Navigating the journey of scleroderma with your child can be uniquely challenging. We understand the need for a supportive community and the necessity of essential information to guide you through the daunting world of scleroderma. That’s why we’re excited to introduce our new support group tailored for parents of kids and teens with scleroderma. Whether your child is dealing with localized scleroderma or systemic sclerosis (SSc), connecting with other parents who share the same journey is profoundly beneficial for both you and your child. All caregivers are welcome.
Virtual meetings twice a month 1st Thursday 8 PM EST/5 PM PST and 3rd Saturday 12 noon EST/9 AM PST.
Meeting Dates:
Thursdays 2024: 1/4/2024, 2/1/2024, 3/7/2024, 4/11/2023 (date changed from 4/4), 5/2/2024, 6/6/2024, 7/11/2024, 8/1/2024, 9/5/2024, 10/3/2024, 11/7/2024, 12/5/2024
Saturdays 2024: 1/20/2024, 2/17/2024, 3/16/2024, 4/20/2024, 5/18/2024, 6/15/2024, 7/20/2024, 8/17/2024, 9/21/2024, 10/19/2024, 11/16/2024, 12/21/2024
Location: Zoom
Support Group Co-Leader: Pamela Pour
Phone: 248-885-7094
Email: scleromom9@gmail.com
Support Group Co-Leader: William Pena
Phone: 323-772-0947
Email: williamscleroparent@gmail.com
Support Group Co-Leader: Isabel Reyes
Phone: 626-703-0619
Email: 4me4us.curescleroderma@gmail.com
