Also view our 
YOUTUBE CHANNEL
Scleroderma Overviews, Lab Test, Symptoms and Disease Specific:
Renal Crisis in Scleroderma
Dr. Philip Clements
https://youtu.be/QV2QsiSyyxE
Sjogren's Syndrome in Scleroderma
Dr. Philip Clements
https://youtu.be/bm-u5PbFK1Y
(Scleroderma Overview) What Your Rheumatologist Should've Told You At Your 1st And 2nd Visit
Dr. Philip Clements
https://youtu.be/gurbvrb9_Qk
Overview in Scleroderma
Dr. Brian Pedersen
https://youtu.be/YtEduC-VaHA
Gastrointestinal Disease in Scleroderma
Dr. Suzanne Kafaja
https://youtu.be/Uyibgtz9DZk
Scleroderma and Dentistry (and Dr. Luis personal journey living with scleroderma)
Dr. Luis Del Castillo
https://youtu.be/hSjQy0sBpO4
Living With Scleroderma: How you can help your dentist help you
Dr. Dan Sizemore
https://youtu.be/OGU_tkLzRHc
Pain in Scleroderma: Recognizing Its Causes and What Can be Done About It
Dr. Daniel Furst
https://youtu.be/wUSa_5pNXVc
Understanding ANA and Antibody Testing for Systemic Sclerosis - A Helpful Guide for Patients
Ed Harris: Scleroderma Education Project
https://youtu.be/0KwOICL2Tl8
Therapies, Procedures and Treatments in Scleroderma:
The Benefits of Myofascial Release and Pilates Techniques for People Living with Scleroderma
Physical Therapist Sara Jacobs and Dr. Susan Nynazi
https://youtu.be/klHbHjLNmVQ
Nutritional Tips and Strategies to Help Bypass Scleroderma Problems
Dr. Susan Nyanzi
https://youtu.be/vno1hVO4RLE
Stem Cell Transplant in Scleroderma
Dr. Suzanne Kafaja
https://youtu.be/kSnlDpTBVAw
Therapeutic Plasma Exchange for Systemic Sclerosis: A Guide for Clinicians
Ed Harris: Scleroderma Education Project
https://youtu.be/cK5z6SrN7gI
Scleroderma Foundation of California: Virtual Education Day
https://youtu.be/eH07nxDQkQQ
Wellness/Emotional Health:
Behind Every Dark Cloud is HOPE
Andrew Botieri
https://youtu.be/N6k9QPUE-2E
Caregiving During Challenging Times
Ginny Maril Ph.D.
https://youtu.be/AdyKWfmZ1p0
Happy in the Now; Living Well in Difficult Times
Dr. Kathy Gruver
https://youtu.be/NpWt8ODfD68
Navigating the Rough Waters of Today: families can be strong vessels!
Elaine Furst RN
https://youtu.be/NZ0aSwUyciA
Caregiver Panel - Caring for a Loved One with Scleroderma - ARMC Patient Education Day
Panel: Pat Guerre, Chris Hulstrom and Pat Major
https://youtu.be/u3FDjkDpl1Q
Caregiver Panel - Caring for a Loved One with Scleroderma - UCSD Patient Education Day
Panel: Emmanuel Munda, Martha Soto and Scott Noel
https://youtu.be/iyTNa3OXmHk
Learn to Laugh at What Scares You - ARMC Patient Education Day
Karen Vazquez
https://www.youtube.com/watch?v=YfA0XnRUGcQ
Scleroderma: Keeping a Healthy Mind - ARMC Patient Education Day
Ginny Maril Ph.D.
https://youtu.be/fntOmp03bvY
Disability:
Documenting Disability: Navigating the Social Security and Supplemental Security Income Claims Process -2020
Speaker: California Licensed Attorney: Megan DiTolla.
https://youtu.be/mUKkcFb0Sh8
Clinical Trials:
Clinical Trials—They Never Actually Fail
Daniel E. Furst MD
https://youtu.be/Dw86NaKGOds
The Latest Updates in Scleroderma Clinical Trials
Dr. Jonathan Mills
https://youtu.be/BTVL8w8g90o
The Upside and Downside of Participating in a Clinical Trial
Elaine Furst
https://youtu.be/nhiE-9zg7eE
Patient/Family Assistance:
NeedyMeds: Help with Healthcare Expenses for the Scleroderma Community -2022
Carla Dellaporta, Director of User Engagement, highlights the educational and healthcare savings resources NeedyMeds offers - especially for those living with or caring for someone living with Scleroderma.
https://www.youtube.com/watch?v=gmuVGdRVaes
Scleroderma and Covid-19:
Scleroderma and Covid-19, New Variant(s) and what you now need to know
Dr. Daniel Furst
https://youtu.be/eOChFFxINJs
Covid-19 Vaccines, New Variants and Research Findings
Dr. Daniel Furst
https://youtu.be/7GZLJRLZaxk
COVID19 Testing & Vaccination
Dr. Daniel Furst
https://youtu.be/MkgsJF1-6eA
COVID19: Ever changing: treatments, vaccinations and telemedicine
Dr. Daniel Furst
https://youtu.be/lfQzlCDraGA
Patient Advocacy:
The Challenges Scleroderma Patients Face When Admitted to the Hospital
Dr. Susan Nyanzi
https://youtu.be/qi1txY5sZbo
The Importance of a Patient Advocate
Sandy Thigpen
https://youtu.be/U9n3c09dn7s
Podcast:
Guest: Dr. Luis Del Castillo, Scleroderma Warrior and Doctor of Dentistry
https://youtu.be/Se6gzG2OJIA
Guest: Dr. Susan Nyanzi Returns
https://youtu.be/xQg3rUHAHGI
Guests: Dr. Elizabeth Volkmann, Dr. Heather Bukiri and Research Coordinator Talaya Martinez from the UCLA’s Center of Excellence/ Scleroderma Program
Guest: Airick G
Guest: Ed Harris, educator, advocate, researcher and patient from the Scleroderma Education Project
https://fb.watch/filnkyAwSr/
Guest: Andrew Botieri
https://youtu.be/z3M9S2YnJog
Guest: Lynn Steblecki
https://youtu.be/fz6vrQLGWRU
Guest: Dr. Brett Thombs of the Scleroderma Patient Intervention Network (SPIN)
https://youtu.be/gF15-Scrofw
Guest: Scleroderma Australia Takes the Icy Hands Challenge Special
https://youtu.be/_9YuhITe9G4
Guest: Dr. Francesco Boin, Dr. Nunzio Bottini and study coordinator, Marianne Bernardo from Cedar Sinai's Scleroderma Center of Excellence
https://youtu.be/QsH6t4YTq7s
Guest: Host Anna Strong interviews the Scleroderma Foundation of California's staff: Andrew Emmett, Executive Director, Tina Burger, Patient Services Director and Sheryl Bishop, Community Liaison.
Join us to learn about our new name and what that all means for our community.
https://youtu.be/QT2XL3TYOmc
Celebrations/Awareness and Fundraisers:
2020 Scleroderma Foundation of California: Virtual Stepping Out to CURE Scleroderma:
https://business.facebook.com/SclerodermaCA/videos/921837418292776/
2021 Scleroderma Foundation of California: Virtual Stepping Out to Cure Scleroderma:
https://youtu.be/bl5kO9ROJ8M
2021 Southern California Virtual Stepping Out to Cure Scleroderma (Long Version) :
https://youtu.be/5-hAwGm_f_c
2020 Foundation Celebration: Honoring our scleroderma warriors
Join us for an evening of celebration as we honor and celebrate those who have worked above and beyond to help the Foundation raise awareness, provide education & support, and raise funds during the COVID-19 pandemic:
https://www.facebook.com/watch/?v=681931852521219
2020 Foundation Celebration Honoring our scleroderma warriors (full run w preshow) :
https://youtu.be/5eyZyI-zdng
2021 Foundation Celebration: Honoring our scleroderma warriors
Join us for an evening of celebration as we honor and celebrate those who have worked above and beyond to help the Foundation raise awareness, provide education & support, and raise funds during the COVID-19 pandemic: https://youtu.be/7St-no8En5Q
Dr. Dan Furst takes the Icy Hands Challenge - 2021
https://youtu.be/A4Y3n1Vk-8g
Board Member of the Scleroderma Foundation of California; Joel Cherman takes the Icy Hand Challenge - 2021
https://youtu.be/upbRpmbNL64
Vertical Cure 2021
Join Board Member of the Scleroderma Foundation of California; Chris Corman along with his family and friends at the annual Vertical Cure to help raise awareness and funding for scleroderma.
https://youtu.be/8jRntTbkqkg
Scleroderma March Madness Basketball Tournament 2017
The Scleroderma Foundation of California holds its first annual March Madness Basketball Tournament at the Pacific Beach Recreation Center in San Diego, CA.
Organized by Nick Manessis in Memory of his aunt Susan France Walker who lost her battle to scleroderma in 2009.
https://youtu.be/tXuDbBNi12M
Speakers and Topics:
Lynn Steblecki - Topic: Cosmetic Procedures and Scleroderma and clinical trials and research findings in Stem Cell Face Therapy: https://youtu.be/eH07nxDQkQQ
Elaine Furst - Scleroderma: Topic: The Third Wheel In Your Relationship (includes interviews from couples living with scleroderma)
Elaine Furst
https://youtu.be/amXRZ3IYg8U?t=5708
Couples Interviews
https://youtu.be/amXRZ3IYg8U?t=8888
